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In order to avoid further bullying and harassment, it is now against subreddit rules to make comments regarding the morality of having children with EDS unless OP specifically asks. The decision to have children is an extremely personal one-Ehlers-Danlos syndrome or not. Sharing your failures or successes with treatments is fine. Soliciting or giving medical advice is not allowed in this subreddit. It is best to avoid giving medical advice over the internet in general. NOBODY HERE IS A VERIFIED MEDICAL PROFESSIONAL. Instead of making a "could I have EDS post?," read the resources provided here first! Please remember that only a doctor can diagnose you. The wiki has information on what Ehlers-Danlos syndrome is, the different subtypes, information on pursuing a diagnosis, and more! This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life.Īccess the wiki index here. Dysnomia Definition, Symptoms, Causes, Types, Trea.This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD-diagnosed or waiting to be diagnosed.Botulinum toxin injection: this injection blocks production of pain.Radiations therapy: radiation therapy is not common but is considered beneficial.Medications: pain relievers are of no use in reducing pain but an anticonvulsant drug named carbamazepine and amitriptyline help in reducing pain.Patients are also asked to take healthy food.
If pain occurs on one side of mouth, then patient should try to take bite with other jaw. Behavioral changes: patient is asked to do some actions like quenching fists, and rubbing cheeks to distract attention from pain.There are many treatment options which are beneficial as well. All these can be the possible causes behind first bite syndrome so care along with proper treatment is required. Pain is triggered by parotid gland upon saliva production. Tumor in head and neck region can also lead to first bite syndrome. 1st it was considered a side effect which occurred after chemotherapy of head and neck region. Nerve damage which occurs during or after surgery. The exact cause behind first bite syndrome is unknown but on going research revealed that it can occur due to nerve damage. Patient feels pain like toothache in lower jaw line i.e. Pain occurs in the back side of mouth near the ears in parotid gland due to production of saliva before or with every bite. Patient feels difficulty in eating and chewing food. Pain sensation starts decreasing with every bite but pain can occur again if patient takes a break during meal. Pain can be described as intense, sharp, needle like pain resembling muscle spasm. There is no age restriction in first bite syndrome and can occur again and again even after treatment.įirst bite syndrome have a main symptom of pain occurring at first bite. Sometimes first bite syndrome is accompanied by retrosternal chest pain and esophageal disease. But there are still some treatments which help in resolving its side effects. It is a self-resolving syndrome which recovers on its own. This syndrome can occur again after treatment with a gap of days, months or years. Sometimes cancer/ tumor in head or neck region can also lead to first bite syndrome. Pain is described as a sharp, intense pain resembling a muscle spasm. Saliva production by parotid gland in mouth triggers pain sensation. It is considered a side effect of a surgical treatment which is performed for cancer in head and neck region. Does anyone else have this intense pain when you first bite into food I assumed it was connected to my TMJ (jaw pain) but have just googled and lo and behold, it has a name 'First Bite Syndrome'. Pain may also become intense if patient take a break in eating meal. First Bite Syndrome Hello everyone, I hope today is bearable for you. This pain occurs at 1st bite and then gradually its intensity decreases with every bite. Parotid gland is located at the back side of mouth and near to the ears. First bite syndrome is defined as pain in salivary gland named parotid gland or in the mandibular region i.e.
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